Bruce Willis’s daughter Tallulah has spoken about her father’s “really aggressive” dementia and why it’s so vital for her household to be open about it.
The Hollywood actor, 68, was recognized with frontotemporal dementia (FTD) a 12 months after his household revealed he was affected by aphasia, a situation affecting speech and language.
“What’s going on with my dad – he has a really aggressive cognitive disease, a form of dementia that’s very rare,” Tallulah Willis advised The Drew Barrymore Show on Wednesday.
Willis added they have been candid concerning the situation as a result of “it’s who we are as a family”.
“But also, it’s really important for us to spread awareness about FTD because there’s not enough information out there,” she mentioned.
“If we can take something that we’re struggling with as a family… and help other people to turn it around, to make something beautiful about it, that’s really special for us.”
She mentioned she had “no idea” about FTD earlier than her father’s prognosis.
The 29-year-old revealed one of many methods she spends time together with her father is whereas listening to music collectively.
“Playing music and sitting in that and this energy of love, it’s really special,” she mentioned.
“A really beautiful way for me to heal through this is becoming like an archaeologist to my dad’s stuff, his world, his little trinkets and doodads,” she added.
Asked about her father’s well being, Willis mentioned: “He is the same, which, I think, in this regard I’ve learned is the best thing you can ask for. I see love when I’m with him, and it’s my dad and he loves me.”
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Earlier this 12 months, she wrote an essay for Vogue about coming to phrases along with his sickness.
“It started out with a kind of vague unresponsiveness, which the family chalked up to Hollywood hearing loss. ‘Speak up! Die Hard messed with Dad’s ears,'” Willis wrote.
Later, the unresponsiveness “broadened”, she added.
“He still knows who I am and lights up when I enter the room.
“He might at all times know who I’m, give or take the occasional dangerous day. One distinction between FTD and Alzheimer’s dementia is that, at the very least early within the illness, the previous is characterised by language and motor deficits, whereas the latter options extra reminiscence loss.
“I keep flipping between the present and the past when I talk about Bruce: he is, he was, he is, he was. That’s because I have hopes for my father that I’m so reluctant to let go of.”