In the UK, a five-month-old girl suffering from a disease called Fibrodysplasia Ossificans Progressiva is turning into a ‘stone’. There is no cure for this rare disease.
Lexie Robbins, a child with Fibrodysplasia Ossificans Progressiva (Instagram)
In Britain, a five-month-old girl has been suffering from a rare disease and now she has started turning into a ‘stone’. The parents of the girl child are very worried because of this rare genetic condition. He has warned parents around the world about the possible symptoms. This incurable disease is so rare that only one person out of 20 lakhs has it. The fatal disease associated with this gene is called Fibrodysplasia Ossificans Progressiva. In this disease, the human body takes the form of ‘stone’.
The name of the girl who is suffering from this serious disease is Lexi Robins. Lexi was born on 31 January. His parents Alex and Dave are from the Hertfordshire region of Great Britain. One day he found that there was no movement in the thumb of the girl’s hand. At the same time, his toes are very big, which did not appear normal from anywhere. Doctors took a long time to cure this deadly disease of childhood.
Why this disease is called turning of the body into stone?
In this deadly disease, the muscles and connective tissue turn into bone. In this disease the bones start coming out of the skeleton. This is often referred to as turning the body into stone. People suffering from this disease die in just 20 years and their life is about 40 years. Lexi had an X-ray in April. Swelling was found in his toe and the toes of his hand were fused together.
How was this disease detected? mother gave information
Lexi’s mother Alex said, “Initially after the X-ray, we were told she had the syndrome and could not walk.” We couldn’t believe it because she was physically very strong at that time. She was kicking. We weren’t quite sure so we did some research in mid-May.
He said that we came to know that he has this disease. We took him to a specialist. We genetically tested it in the US. In this his illness was detected. Now this child cannot get any injection or vaccine. She will not even be able to give birth to a child. Scientists are now fighting to save the child’s life.
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